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Patients as policy actors / edited by Beatrix Hoffman ... [et al.]
New Brunswick, N.J. : Rutgers University Press, c2011
book jacket
Location Call Number Status
 4th Floor  R727.45 .P455 2011    AVAILABLE
Subject(s) Patient advocacy -- United States
Medical policy -- United States
Physical Description viii, 309 p. : ill. ; 23 cm
Note Includes bibliographical references and index
Contents Introduction: patients as policy actors / Nancy Tomes and Beatrix Hoffman -- Solitary advocates: the severely brain injured and their surrogates / Joseph J. Fins and Jennifer Hersh -- Physician-patient communication in the care of vulnerable populations: the patient's voice in interpersonal policy / M. Robin DiMatteo ... [et al.] -- Is it time to push yet? The challenges to advocacy in U.S. childbirth / Elizabeth Mitchell Armstrong and Eugene DeClercq -- A pound of flesh: patient legal action for human research protections in the biotech age / Lori Andrews and Julie Burger Chronis -- From outsiders to insiders: the consumer-survivor movement and its impact on U.S. mental health policy / Nancy Tomes -- "Don't scream alone": the health care activism of poor Americans in the 1970s / Beatrix Hoffman -- The canary in Gemeinschaft: using the public voice of patients to enhance health system performance / Mark Schlesinger -- Patient appeals as policy disputes: individual and collective action in managed care / Marc A. Rodwin -- The power of us: a new approach to advocacy for rare cancers / Amy Dockser Marcus -- Patients and the rise of the nurse-practitioner profession / Julie Fairman -- A house on fire: newborn screening, parents' advocacy, and the discourse of urgency / Rachel Grob -- Measuring success: scientific, institutional, and cultural effects of patient advocacy / Steven Epstein -- Epilogue: principles for engaging patients in U.S. health care and policy / Rachel Grob and Mark Schlesinger
Series Critical issues in health and medicine
Alternate Author Hoffman, Beatrix Rebecca

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